Why share your health data?

Our world has never been more data-driven. My personal data is all around me — each time I sign up to use a new app or online service, post on Twitter, or use my Apple watch. We can’t run from all this data sharing. It’s everywhere.

What would make you want to share your health data?

We just ran a poll asking the One Drop Community what would make them want to share their health data. Of those who responded, 1 in 4 said they’d share their health data if it would help other people, if it was shared anonymously, or if it would help make their own care more effective.

Poll: What would make you share your health data?
Total number of responses = 360

Data is powerful

According to a recent study, people understand the power of their data. They’re willing to share their data, but — only — if they get a more “hyper-personalized experience” from the businesses, brands, and organizations they interact with.

People’s willingness to share personal data also varies by who will be using it and how it will be used. People are most comfortable sharing their data to get better healthcare and have better health outcomes. The priority for data-sharing is as follows:

  • 67% healthcare
  • 57% financial services
  • 50% public sector
  • 45% utilities
  • 32% retail services
  • 28% social media

Health Data Sharing

Where is hyper-personalized healthcare?

The public is clearly ready to share their data to receive better care and have better health. Healthcare organizations just haven’t shown up to the party.

More often than not, healthcare organizations aren’t using people’s data to deliver a more hyper-personalized experience. A healthcare revolution is needed for that to happen.

What does hyper-personalized healthcare look like?

Hyper-personalized healthcare uses individual and population health data to tailor clinical care, treatment, and health education and advice. It delivers all of these things in a convenient, user-friendly way, leveraging the tools people have and use.

In a hyper-data-driven world, people expect extreme personalization. The more personally relevant, the more useful. That’s what’s needed to improve people’s health and quality of life.

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Chandra Y. Osborn PhD MPH
Chandra Y. Osborn PhD MPH

Pre-diabetes free since 2011, Dr. Osborn's a mother, wife, and expert in diabetes health communication, disparities, self-care, and leveraging health tech to improve people's lives. She's been understanding, predicting, and promoting diabetes self-care since 2003, first as a scientist and now as VP of health and behavioral informatics at One Drop.